Wednesday, April 18, 2012

Where we are today (April 2012)




We are beginning to get connected with other families with children who are deaf or hard of hearing. We have attended an amazing workshop that brought tears to my eyes seeing the preschooler with the cochlear implants - pure joy

The family is learning sign language to help with communicating with Chloe.  The truth is Sydney is far better at it then the parents.  She absorbs the signs like a spounge.  The family makes a game to see who can "out sign" each other. 

We decided to have genetic testing done - just to see if our "Why" question could be answred and also to assist with the cochlear implant process. God answered our prayers again and provided us with an answer. The day we got the results was big, a huge weight was lifted off our shoulders. Chloe's hearing loss is due to a gene mutation (GJB2) and the most common of GJB2- which means both parents are carriers. As parents, we have a one in four chance of having a child with hearing loss. 

We are awaiting to hear the "green light go" (as I like to call it) to see if Chloe is a candidate for Cochlear Implants.  We have been through all the necessary appointments as part of the process... a MRI will be needed prior to surgery to verify nerve is present and will be used as a map (if implanted). In the meantime, we have to make a decision on which "brand" of device we want her implanted with. 



Chloe has begun to "move" around everywhere, and I mean everywhere.  She loves exploring all around her - especially where her Big Sister is playing.

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